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November 2, 2005, 12:02 pm PST
My baby has PWS, too
Quote From: nichelle81What?! how on earth did I bring PWS to light in a negative manner?! IT IS WHAT IT IS LADY! I told it like it is, im sorry if you cant handle it....I went on Dr. Phil and told the truth. I went on that show because that is what my daughter has, and because the producers called me to do so. My kids are spoiled because others spoil them as well and I do once and awhile...so what. I admit I have ALOT to learn about PWS. ALOT. That may be part of my issue. And Im working on it. Youll see what you see on TV, but you have NO clue what my life is like on a daily basis. So have pity or whatever it is you say you have on me.....whatever. It seems to me like you are more concerned with HOW I MADE PWS look on National TV. I will also be watching the show on pins and needles. Have a nice day. Nichelle:
I am sorry if my words upset you. You need to understand that just because you feel that your situation is "the way PWS IS" does not make it so. Your situation is tough, no question, but the way you have chosen as the adult to deal with it is abusive and wrong. All I am saying is that there are many, many PWS families out there that deal with the situation without abusing their child. It is NOT easy for them either, single or not and many of them are.
The only reason we are concerned is because your kids need you to be the grownup and handle the situations responsibly and our children with PWS do NOT need PWS to be portrayed by a family that is totally out of control when we spend every waking minute trying to handle our indidividual situations with maturity and control.
I am sorry, but you are NOT the right person to portray the "typical" PWS family at this time. I do think that you can be and hopefully with Dr. PHil's help you to be an in control adult when dealing with your own situation.
As one PWS mom to another, I applaud you for getting help and wish you the BEST of LUCK with learning to control your temper and anger.
Joyce
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