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Topic : Living with Chronic Pain

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Created on : Thursday, July 07, 2005, 09:06:20 am
Author : dataimport
Do you or someone you love suffer from chronic pain? Share support with others here.

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July 20, 2007, 8:20 am PDT

To angelicspirit...

Quote From: profderien

hullo --

 

is it possible that these references to scoliosis are the same as what your initial MRI called a "congenital" abnormality?  it surely cannot be a very serious case, else you would know about it without need of any scan at all, trust me...

 

cholecytitis which happens all the time -- ?  you have gall bladder attacks/gall stones? let me see what my gut tells me on that one, because i do know how very, very painful that can be... hmmm, wait!  the message is getting clearer... here it comes:

 

HAVE IT REMOVED! i am in no way making light of your problems.  i do think that in the years since the accident you have understandably become obsessed with all that is wrong.  play to your strengths instead.  and when people recomment counseling or therapy, there is nothing in that that impunes your character or sanity -- quite the opposite, really... the body and the mind are so intimately connected that to care for one is to respect the other.   angelicspirit, i gotta admit that red flags went off when i read in your initial post that a lawyer had pretty much controlled your medical treatment immediately following the accident. by the time your pain became chronic in nature -- you didn't have a good pain management doctor or clinic and that can make all the difference in the world.   i have been kind of where you are now... and yes, you are *very* angry, by the way (trust us)... and can only tell you that my life improved a great deal when i decided to let a few medical professionals just do their job without my projecting weird and evil intentions on them.  i hope you will be able to do the same.  just by letting go of some of the control -- you can take a deep breath and relax some.   do this old hag a favor, would you?  STOP PLANNING TO BE IN PAIN FOR THE REST OF YOUR LIFE.  you wrote somewhere that that was what you were told.  well, that is lousy advice!   i would love to hear more about your college work and what you plan to do there -- when you have spare time.   take all this with a huge freaking grain of salt, know i care, and... be well -- prof
Prof has the right of it. I've been thinking much along the same lines she has.

Really, it's an easy trap to get into , the negative thinking when something bad happens to you, and not looking at what can be done. Do some research and you will find out that there treatments for herniated discs. Google is your friend! Try to do some searching and find out what is out there.

I'm actually surprised your still suffering from herniated discs as that's usually a short term problem and not a permanent injury. I would recommend you get a new MRI as the one from the accident is probably no longer valid.

Scoliosis is common. Most people have some degree of scoliosis, so much so that it's not even worth mentioning by the medical professionals unless it's significant enough to be causing problems. But, the radiologist had to note that on the MRI findings because it was there.

But yes, Prof is right, you need to let the doctors do what they have to do. Physical therapy hurts, and will make you feel worse before you feel better. It's about strengthening those muscles, not giving immediate relief to the pain.  It's hard work, but must be done for any bad back. Other treatments often take time as well.

And, though you protest that you are not depressed, you may well be. Granted, I'm not a doctor. But I've been through depression long enough to know the signs, and the negattive thinking is a big sign. Trust me, depression does make you hurt physically as well. Please do yourself a favor and visit the site below and at least check it out. They have a self-assessment check list, too, that you can print out and take to your doctor:

http://www.depressionhurts.com/index.jsp

I cannot tell you what a difference getting my depression treated has made in my pain levels as well as my moods.

Blessed be,

Morgan

 
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July 20, 2007, 8:26 am PDT

Living with Chronic Pain

Quote From: profderien

dear lashawnna --

 

how hard it must be. you are being very faithful to keep a good image of " mommy"  in the children's minds.  it may be easiest to do it now -- but later, depending in large measure on what "mommy" does, the situation may be very painful and divisive.

 

in our case, we were handed over to our father's custody -- who then managed to do the best thing in his life by marrying my stepmother, a lovely woman.  sadly, they both tried to keep any message, letter, or phone call from my biological mom, a secret -- even occasionally taking turns to say "see? she does not even try to contact you, she has abandoned you."  i remember playing along, somehow knowing that it pleased them for me to echo the words and to say things like "i don't ever want to hear from her..."

 

i remember saying that when they did give me a letter from her -- she had enclosed a beautiful picture of herself (absolutely gorgeous, i wish i still had it) and her two children with her new husband, a turkish doctor.  (as it turns out, if i could have my way -- i would've liked to have been raised by him and my stepmom -- and trash all that biology!) 

 

as soon as i said i wanted no more contact, and i think i was about 8 years old, wham-bam, it was as if the oracle had spoken.  please don't ever hold a child hostage to such a statement, such a decision! 

 

*every* child wants to know that there is someone out there who loves them beyond words... like no one else can.  when i "met"  my mother, it was a twisted, scary scenario and, after some time, i knew that it was a relationship with no future.  she was happily remarried, with two more kids.

 

she had no idea of what had happened to any of us and was completely unprepared for much of what i had to tell her, when we were re-introduced.  i was 16 and  it was left to me to tell her that her firstborn son had run away years ago, that no one knew where he went, that i had always thought  (and been encouraged to think) that he had made his way back to her (she lived in turkey, then.).  she collapsed.  finally, it was left to me to tell her that her middle son had made me promise to tell her nothing about him. he was that angry about her abandonment -- and remains so.

 

still, i think kids need to know that there is someone out there who loves them like no one else can -- even if adults know them to be people of poor character, who are even possibly detrimental -- in that case, visits can be supervised, etc. 

 

if completely cut off -- the pendulum will swing against all logic and young ones *will* resent it if they've not had contact.  with today's medical help, your daughter will probably live a long time -- and i pray she avails herself of that help -- and the children will seek to understand how all of this started.  tell them the truth -- in an age-appropriate way -- and give them as many choices as you can -- to talk to her, see her, write her, visit with her, even draw her, make collages of/for her.

 

you are their sentinel, the gate-keeper.  and, lashy, i know you are so tired.  you are so good.  is there **no one** to share the daily burdens with?  i am not speaking of your husband but of a friend, a relative, even someone from the father's side?

 

pitiful -- but it is 2:30 pm and i cannot wake up.  we are leaving for the gym -- ugh -- in half an hour.  ugh. ugh.

 

i hope the stress on you lightens because stressors in whatever form -- physical and emotional -- wreak havoc on the auto-immune system.  you are probably laughing at me!  "she wants me to avoid stress... wha...ha...ha!"

 

you *are* doing the right thing by these children -- and no one could do more. 

 

love,

prof

Prof, oh how I wish that I had some help but unfortunately, I don't. The children's fathers are absent parents, and they could care less what happens to the kids. Yes it's ashamed tfor lack of a better word but I am dealing with it. I am trying to get a routine together with them, but some days, my pain levels are much too high to do certian things with them.

I had plans to take them down to a local museum on yesterday but I felt too bad to even drive.

Eventually, we'll head that way though. I am really trying to keep them as occupied with activities as I can because everyday, they asked for my daughter more and more

 

I have always appreciated your willingness to share your experiences with us here, and I know that some of your experiences have been rather painful to speak about such as the above mentioned. You are a good person Prof, you have such a wonderful spirit. And how I do wish that I could make your pain better for you. You have managed to support, and give valuable information to those us seeking it, and still somehow keep going.

 

I will do my best in raising the children, and all out of the love I have for them both. I love my daughter but I question many times just how she could just leave her children behind. After reading your post, I am left to ponder the thought that just maybe, just maybe she never really wanted to be a parent from the start, that this situation she finds herself dealing with was just the opportunity to say good-bye. But until she returns home, if she does, I guess that I'll be left to wonder why she's done this.

 

I wish you a good day Prof, a day that allows you to rejoice, and be glad.

 

Love,

Lashy

 

 

 
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July 20, 2007, 8:35 am PDT

angelicspirit... cholecystitis

Quote From: angelicspirit

hi, just to let you know, i had the gull bladder removed but it doesnt stop the attacks from happening. I have not become obsessed with what all is wrong. I am just upset cuz my life has changed and my youth was taken away. I can no longer do the activities I once did. Do you know how that feels? I am only twenty one and my life has changed to the point i cant do what i did before. I was in bowling tornaments and won money in them, now i cant do them any more. I guess you would have to be my age to understand what I am going through. I can no longer go to clubs and dance when my friends go. So I have every right to be upset. As far as the attorney taking over my medical treatment, I had input and he did everything possible to help me out but nothing worked. That is the fact. He was a very good attorney and didnt take over my medical treatment, he just made some recommendations and it was my choice to take it or not. He sent me to the best orthopedics and doctors in my area. As far as being in pain the rest of my life, that is the truth. I wasnt just told by everyone including my health physician. I am just stating facts to you. Just look at my age. I am twenty one and still growing and because I am, my pain will get worse. I am so sick of people not taking my age as a consideration. Try to be in my shoes for once. Oh and just to let you know, I scheduled an appointment for an orthopedic. So you see, I am trying everything possible. As far a college, havent started yet, right now I am taking the summer off because I have been having to withdrawl from my classes because of the pain and me being in and out of the hospital. So yeah. Hopefully people will start to take my age as consideration and understand what I am going through.
You cannot still have cholycystitis as your had your gallbladder removed! You have to have a gallbladder to have cholecystitis! I don't know what's causing your pain in that region, but it's not that.

Blessed be,

Morgan
 
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July 20, 2007, 8:41 am PDT

Living with Chronic Pain

Quote From: lady_elf

You cannot still have cholycystitis as your had your gallbladder removed! You have to have a gallbladder to have cholecystitis! I don't know what's causing your pain in that region, but it's not that.

Blessed be,

Morgan
Yes i can still have it. Just because I had it removed doesnt mean anything. You can stil have cholycystitis even if the gull bladder was removed.
 
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July 20, 2007, 8:48 am PDT

No... you can't

Quote From: angelicspirit

Yes i can still have it. Just because I had it removed doesnt mean anything. You can stil have cholycystitis even if the gull bladder was removed.
Cholecystiis is Inflamation of the Gallbladder. By definition, one has to have a gallbladder for it to be inflamed. I am not denying that you have pain in the same region. I'm just saying that Cholecystitis is not the cause if your gallbladder is removed. And if a doctor is telling you this, you need to find another doctor.
 
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July 20, 2007, 8:50 am PDT

Hi all

I hope this message finds everyone well and as pain free as possible- I will write more in detail another time- I'm getting ready to head out of town to the in-laws' family reunion. Not too thrilled about that.  It's a 4 hour drive and I feel just way too tired to go.  I am hoping that getting out of the house for something other than work, the doctor and the grocery store may help my mood!! :)

anyway, just saying hi - I haven't posted in awhile and didn't want to lose my spot on the board!
Everyone, please take care of yourselves - I'm thinking about and praying for you all-

~All the best

Debbie
 
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July 20, 2007, 9:04 am PDT

Living with Chronic Pain

Quote From: lady_elf

Cholecystiis is Inflamation of the Gallbladder. By definition, one has to have a gallbladder for it to be inflamed. I am not denying that you have pain in the same region. I'm just saying that Cholecystitis is not the cause if your gallbladder is removed. And if a doctor is telling you this, you need to find another doctor.
you are wrong. it is the inflamation of the gull bladder wall  and nearby abdominal lining. look it up. that is the correct definition. Also gull stones can return even if the gull bladder is removed.
 
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July 20, 2007, 9:22 am PDT

OK, so you can

Quote From: angelicspirit

you are wrong. it is the inflamation of the gull bladder wall  and nearby abdominal lining. look it up. that is the correct definition. Also gull stones can return even if the gull bladder is removed.
You can get gallstones without a gallbladder. I was mistaken.

But, you do realize that you need to watch your fats and cholesterol after gallbladder removal, don't you? And that gallstones (there is no u in gall) are formed by the excess cholesterol?

http://www.hgriggs.com/gall_purpose.html

See, this is what I'm talking about, finding out what you can do to help yourself. If you are still eating the same diet as before your surgery, yes, you are going to have problems.

Blessed be,

Morgan
 
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July 20, 2007, 9:23 am PDT

Living with Chronic Pain

i think its time that i just leave this dicussion board for good because it seems everyone just wants to gang up on me which is no help to me at all. especially the fact that everyone says i am depressed which is irritating me because i am not depressed. i have a good support system through my fiance who understands what i am going through because he is with me 24-7. i just guess that someone just needs to be around a person to truely understand what someone is going through. just remember everyone's body is different and reacts differntly its not fair to go by experiences. maybe one day you will truley understand what i go through pain wise and medically.
 
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July 20, 2007, 9:26 am PDT

Living with Chronic Pain

Quote From: lady_elf

You can get gallstones without a gallbladder. I was mistaken.

But, you do realize that you need to watch your fats and cholesterol after gallbladder removal, don't you? And that gallstones (there is no u in gall) are formed by the excess cholesterol?

http://www.hgriggs.com/gall_purpose.html

See, this is what I'm talking about, finding out what you can do to help yourself. If you are still eating the same diet as before your surgery, yes, you are going to have problems.

Blessed be,

Morgan
its fine. everyone is entitled to mistakes. i do realize that i do need to watch my fats and cholesterol. i am doing that gradually. as far as having pain there the surgeon did inform me that i will be in pain for a while there because i had over half a dozen gall stones and it takes time to heal. havent had much healing because it happened in april.
 
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