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Topic : Living with Chronic Pain

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Created on : Thursday, July 07, 2005, 09:06:20 am
Author : dataimport
Do you or someone you love suffer from chronic pain? Share support with others here.

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July 22, 2007, 5:19 pm PDT

Well...

Quote From: angelicspirit

For the past two days, I have been having severe pain on upper right side of stomach with severe upper back pain. Dont know if I should be concerned or not.
You might want to ask your doctor.   

No, seriously. Not being mean, but ask your doctor.

Blessed be,

Morgan
 
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July 23, 2007, 4:21 am PDT

Dutch pie

Quote From: mustbecrazy

I finally took the time to figure out how to start a diary!!!  Morgan, you inspired me to start, as well as others who mention their diaries.  I don't know how to read other's diary entries...I'll figure that one out later.  My first diary entry says that I'll start tomorrow...what a procrastinator I am...really, I am just busy tonight...gotta get John's lunch made for tomorrow  (Yes, I make his lunch every day, and tuck litle love notes in his shirt pocket once in awhile).

 

I'm having my sleep study tonight to confirm for the insurance company that I have sleep apnea...I hope it goes well. 

 

Has anybody seen "Premonition", the movie with Sandra Bullock?  That's what I'm getting for my "birthday movie"...we get a DVD for every birthday and holiday...a way to build up our collection.  If you have seen it, what did you think? (without giving away the plot or ending, please).

 

My birthday is coming up this Monday.  We are cooking shrimp, imitation crab, corn on the cob, and some cous cous...nothing too difficuly for my family to cook.  For dessert, we're having "Bubble Gum Dump Cake".  It's a dutch oven recipe, but we're using the oven this time.

 

Here's the recipe:

 

Bubble Gum Dump Cake:

 

2 cans Raspberry Pie Filling (Or large jar Raspberry jam)

1 Box white cake mix (dry)

1 can (12 oz) RED soda pop

 

Grease you pan first. (13x9 cake pan)  Then dump in the pie filling.  Next, dump in the DRY cake mix.  Next, dump the pop over the top.  DO NOT STIR.  Bake in the oven at 350 for 45 minutes.  Let cool...enjoy...so easy, even a caveman could do it!!  (hope there aren't any cavemen who post to this board...wouldn't want to offend anybody) 

If you are using a dutch oven...the cast iron kind...get some charcoal going, and dump your ingredients into the greased dutch oven.  Make a pile from half of the charcoal.  Set the dutch oven on top of it, and put the rest of the charcoals on top of the dutch oven lid.  Let cook for 45 minutes.

Personally, I like the cake pan version the best, as I don't particularly like the taste of food cooked in cast iron.

 

Becky

 

 

 

 

I wish you my dear Becky,

 

 

A HAPPY BIRTHDAY!!!!!!

 

 

 

Enjoy the day and night(hmm) but I am Dutch but i have never heard about a dutch pie or even a dutch pie, but anyway, i hope you will have a very nice and happy, painfree day.

 

Yours sincerely, simonecornelia

 
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July 23, 2007, 4:45 am PDT

Hello country-girl

Quote From: countrygal28

I also have Degenerative Disc Diseease at L4-5 & L5-S1 along with spinal stenois/spondthesis/Chronic Lumbar Radiculopathy. I am 28 yrs old. I went to a lot of doctors. One doctor suggested Endoscopic Distecomy. I had that done because I was in so much pain. I was using a walker and needed a wheelchair at times. I was not feeling any better and getting worse. I had the L5-S1 anterior lumbar interbody fusion. I was still not feeling any better either. I doctor did say I needed a 2 level fusion but it was goin to be a huge surgery but never really followed up. I had called and called the office and the office people would either hung up on me or transfered me to a voicemail. I left a voicemail and never got a response. I had a lot worse go on. I had the first surgeon saw me a few times but later accused me of making my pain up, he did not know what was causing my pain, corned me in his office, yelled at me and threaten to call the police on me because I was distrubing his office. I was crying and upset that how could a doctor do that to me when I am in so much pain. I had a friend from work in the waiting room waiting for me and he did not hear anything. Later on I had L4-5 fused this surgery was 4 screws, 2 rods, a bone, and a redo fusion at L5-S1 through scarum. It took the full 18 months to heal. I started having severe pain about 6 months into the 18 months and has not gone away. This last surgery was in 1-05. I lost my job, my insurance, and had to move home with my mother in NM. I am now goin to a pain doctor and goin through pain management. I have had shots, and Neurolyis. The doctor has said I will have this for the rest of my life. I am not happy to hear that but she is nice. She has mentioned a spinal chord stiumlator but I will not do it. At the time I was living in Phoenix, AZ and I was raised in New Mexico. I went to an art school and lived with roommates. I had moved several times. I had got a one bed room apartment by myself. My parents had came up and brought all my stuff for my apartment. My mother has a heart disease and so my dad and I had to move everything. About 2 weeks later I started having pain. It felt like I had feel down a flight of stairs which I did not.  

Well,well,well, when i did read your post, it was like i was like hearing my own story in the beginning of my ilness*

 

Welcome to the board,CG, I have to say 2 things and they will not be injoyable :

 

1. The stupid thing you did was putting screws in your back but I WAS ALSO STUPID to do it. I have 6 of them, Type Graff, very painful operation and

 

2. Your pain doctor is right*, you have this for the rest of your life.

 

 

Now 2 questions:

 

1. Do you have from your lowest screws L5-S1, pain that goes through your bottom to one of your legs, like a line-pain, beginning middle buttocks* to you your one or 2 legs, and howfar does it reach, till your thy* or legs, foot, or biggest toe?

2. Do you have Cröhn-disease?

 

If You can answer those 2 questions, maybe i can help you a bit by helping surch for good medication and swimming. I explain later. Sincerely,simonecornelia(sim)(simonewith an e)

 
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July 23, 2007, 4:59 am PDT

dear Lady-elf

Quote From: lady_elf

I just took one heck of a tumble.  It's my  own fault for rushing when I'm hot and tired and  emotional.

I was working on my chainmaille (but that's a whole other story which I may post about in my diary) and when I do something, I become single sighted. Sometimes that's good because it's hard to focus on emotions at those times. But, the cats were meowing at me to be fed.

So I gave up, aggravated but knowing I would get no peace until they were fed (Prof, you likely know the aggravation!), put my work down, and took my coffee mug, which was still about a quarter full of now cold coffee into the kitchen at the same time, and leaving my crutch  behind in my hurry. (You see it coming, don't you?)

Halfway to the sink, my  right foot caught in the cord of the vacuum I'd yet to put away, sending me airborn and twisting midair in one of those surreal falls where you're aware of every moment as if it were in slow motion.  Because of the braces, I was unable to free myself of the cord: the braces keep my ankle from rotating or bending downward.  I bounced of my righ t hand and hip and then landed flat on my back, still holding on to the now empty coffee mug and now facing 180 degrees opposite of the direction I was heading.

Like some kind of tension breaker, I just lay there sobbing  more from the combined facts that falls are scary things that it was the last straw of the day  than from pain. Once I was sure nothing was broken, I picked myself up and started crying even more  when I saw that the coffee flew all over the floor and the range.

I wiped it up, fed the very startled cats, and then sat down.

Now it's starting to hurt. I already have a small bruise on my inside wrist, but that's the least of it. My hip, I can already tell by how much it hurts, is going to be all sorts of "pretty" colors. My left ankle  hurts - trying to figure out how they got hurt, unless the hinge that  lets my foot bend upward (like when kneeling or climbing stairs) caused me to bend them too far up in the launch.. I'm not sure about the knees, but I. My back is tender where I landed on it. And my muscles  are turning to concrete just from the shock of it all.

And me without any Darvocet. Ah well, I'll live. I've been through worse. I just hope I have better luck when I go to bathe tonight. *chuckle-sob* And bathe I must, because not only am I hot and sweaty but I think I have coffee in my hair.

Blessed be,

Morgan

My dear Morgan,

 

How in Gods name is it possible, that you must fall down. I am so SORRY. I hope you did not break anything, allthough * i am troubeld* about your wrist. Go to the hospital or a doctor to be sure, ok? Love you, sim

 

PS. Let the coffee in your hair,you don't see the grey-ones than anymore and you know, a hip is also beautifull in green and purple and yellow colors, it is just a bit different that is all. Just joking, Morgan, you know sim, I feel sorry for your fall.

 

I hope truly* You are ok. By the way, thank you for explaining PT to me.

 

I still have read11 pages and write a letter to prof and Lashy. Hang in there,my wonderful elf.

Love you, simone

 
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July 23, 2007, 5:50 am PDT

My Lashy(and you are my Lashy!!)

Quote From: lashawnna

Good Morning all, and I welcome you Ladidi100.

Even though I don't suffer from RA, there are a few here on this board that suffer with that disease, that could be very helpful to you if no more than to lend you an ear from time to time. You seem to be a very loving wife, and mother that has suffered a great deal from daily bouts of pain. My prayers are with you from this day forward, hoping that each of your days will be as pain-free as possible.

 

Prof, I haven't heard from you in a few days, I hope that everything your way is alright. Just know that you are in my thoughts today.

 

Becky I am anxious to hear how the CPAPA  has done for you in the last few days.

 

Simone- I am was hoping to have seen a message from you today also my dear. Just know that I am thinking of you too, wishing and praying that your day is going well.

 

I was telling Grandmother Morgan earlier that it is getting rather difficult to keep up with the demands of the grandchildren. I have to keep a fair amount of nomalcy in their lives, and keep them from getting too bored. I since signed them up at a local library here for "story telling', each Monday and Thursday of the week.

For the days that I feel too bad to get up out of bed, I have to find the strength in me to at least get up to fed them, and get them ready for the days events.

 

If I find myself being in so much pain that it's just too unbearable to deal with, then I have to rely on my dear husband if he is in from work to assist with something. My youngest daughter is here from college but will be returning back at the end of next month, so I'll be here most of the time alone after she leaves going almost 4 hours away from home.

 

I have decided to go back to work part-time. It will be too demanding to try and work full-time, and then return home and take care of the children. It would be just too much.

 

I haven't heard anything more from the children' mother, my daughter for a few days, and I must admit that I am a bit worried. I have thought endlessly that she'll one day return back home, yet pregnant again!!  Even though she's married now, I am unsure if she has made her new husband aware of her illness, and that worries me too.

The mother in me wants to hold her close, and let her know that everything will work for the good of The Lord at times,  then there's those times that I want to sit her down and scold her.

I am left feeling a bit angry that she has left her children behind feeling that she needs this time to get herself  together. I have raised my children, and I am stressed because at this point, my life has to change to give the grandchildren the structure and normalcy that they need to be productive.

I have pain everyday, but for the days that I have pain so unbearable, I am still left to do what is needed for them.

We all have good days, but we all have those days that you just want to throw the covers over your head and let the world pass you by for a day or two.

Now I feel that when my daughter does return back here, she'll have yet another someone that I'll have to grin and pretend to accept!  This man is no good for anyone. He has been a throne in my side for some time now, and I feel that he has taken full advantage of my daughter.

But I can't exclude my daughter's behavior even if I wanted to. She's a grown woman with two precious children, and she should know better than to just up and leave with only a note left on my dining room table explaining her intentions.

She knows full well my situation, she knows that for some time now, I've been debating if and when I should stop working for the good of my health, but she leaves me with the biggest job of all, taking care of the children. A very SELFISH act indeed.

My marraige has suffered behind this. My husband loves me, but does he want to confine himself in raising children for another 15 to 16 years of his life just because he is here with me? And how would I feel if the shoes was on the other foot?

I know that some may say that we both married each other, and that we took vows to love each other through the pain, happiness, and in between battles but, I am afraid that he is not so ready to accept this new way of living.

We've had numerous discussions about raising the grandchildren, and he always says: Well LaShawnna, I have only six years left before I retire, I had planned to do some traveling, and for us to do some things that we couldn't begin to dream of doing at this point, are we going to have to postponed doing these things, knowing full well that you may not be healthy enough to do anything within the next few years?

I have no doubt that even if my husband does decide to walk away from this that I'll have both of my grandchildren right there beside me for the length of time that they'll need me, but it does get scary to know that I could lose my marriage, the marraige that I have given 110% to.

My first marriage to my children's father didn't work out, and I was a single mother for years. And now that I can finally start enjoying my life, yet something else has slapped me in the face once more.

So it makes me feel that I am left to chose, my husband, or my grandchildren. The bible tells us to forsake all others, but I am so sorry God that I cannot turn my back on my grandchildren, the chilren that you've blessed us as a family with. And all I can do now is to continue to pray that God gives my husband the strength and love for the kids that he will do what is right for us as family.

I had such a wonderful day on yesterday. But as my husband left for work this am, he told me that he didn't know just how he could raise the kids, that he loves the kids but, he is not ready to give up what it would entail to raise the children.

I am very unhealthy at this point in my life, and what would I do if he decides to walk away? I could continue to work but the kids would basically be raised up in daycare because I would have to work at least two jobs to keep the household funtioning properly. My love for my husband is the most concerning if he walks away because I can do the employment, but I love my husband with everything I have in me.

One day he tells me that he feels comfortable with the idea of raising the kids, then a few days later, he'll say the complete opposite.

Some say that 'time heals', and that may be true for certain circumstances, but sometimes, 'time' can also leave one bitter, and resentful. So if my husband being here with me will make him grow resentful, and bitter, yes I'd prefer that he walks away. I would never ever want to be accused of making someone's life unfulfilling. I do feel at times that he resents the fact that I am not as 'healthy' as he once thought, that it has taken him some time to grow accustomed, but in my heart and mind, I would like to say that if he truly loves me, then he would walk beside me as he once promised.

 

Ok my friends, I have vented for the day, and I do appreciate that you have read this in it's entirety, I must go now and get my babies ready for the day. Please keep me in your prayers daily as I will do the same for you in return. Loving you all soooo  much for just being here.

 

Love,

Lashy

 

Ps. Please excuse any typo's.

 

 

 

 

 

Dear friend of mine, wish i could hug you.

You are so brave, a fighter, but that you already know from me,don't you

That was a long post, only Prof can do better, even in double(hihi),hey prof, joking!

 

Lashy, you worrie to much, yhe baby's are with you, that is a fact.

Your husband loves you, that is also a fact.

He can not vent here, so he vents on you, normal rreaction, would i say.

We here have saying, : "You vent and fight (Quarel*) with the people you love the most!" And is A fact.

 

So let him vent on you, i know that with you hurting a lot and the baby's, your work, it is not easy, but take his growing and venting as a surplus*.He will not vent with your neighbour, no it is you,

SO, that means he cares a lot about you and the children.

 

What you said about your daughter that she most prove to you that she is a fit mother, don't hope for too much, my girl, i don't want to disapoint* you. You know, i always say what is in my heart to you and sometimes itis hard. But you know why: BECAUSE WHEN SHE CALLED, SHE DID'NT

EVEN ASK FOR THEM!!!! NOT TALK TO THEM? NOT EVEN ASK HOW THEY ARE. HAVE THEY BEEN SICK, NOT A D....N THING!!!! She does not disurve you or her children.....

She may be your own fles and blood, but how far will you let her ruïne* your hapiness,your life!!!

Think about it, my Lashy, you have rights to and so does your husband and SO DO YOU,my sweet Lashy.

 

I don't want to hurt you, you know that, but please, concentrate on your husband and the children, be thankfull that they are negative,visit your son, and give hope to your other daughter. Can she help a bit with you now, untill you are better recovered, and spend some time with your husband,if you can without discussing, just enjoy each other. It will make you more secure* and he will not feel like the fifth wheel on a wagon. Because i think that that is the reason, he is acting that way. You know as well as i that men can be like children sometimes, who need some attention from time to time. Think about it. Love you, Lashy, simonE

 
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July 23, 2007, 6:20 am PDT

Simone...

Quote From: simonecornelia

My dear Morgan,

 

How in Gods name is it possible, that you must fall down. I am so SORRY. I hope you did not break anything, allthough * i am troubeld* about your wrist. Go to the hospital or a doctor to be sure, ok? Love you, sim

 

PS. Let the coffee in your hair,you don't see the grey-ones than anymore and you know, a hip is also beautifull in green and purple and yellow colors, it is just a bit different that is all. Just joking, Morgan, you know sim, I feel sorry for your fall.

 

I hope truly* You are ok. By the way, thank you for explaining PT to me.

 

I still have read11 pages and write a letter to prof and Lashy. Hang in there,my wonderful elf.

Love you, simone

Thank you dear, I'm fine, really.  My wrist is healed, that was minor, and the only thing left from the fall that hurts is the hip joint where I bounced before landing on my back.

Falls happen for me, and will become more and more common as the years go on. This one scared me more because of the twisting and turning I did in the air, and the fact that I was alone and already overly emotional before the fall.

Speaking of recipes (or receipts for those of  you who prefer that spelling), my mother used to make Boterkoek (Boterkook?) and I loved it. I haven't made it in years, I should try to find the recipe back. (I hope I haven't lost it! I know it was like 2 eggs, 2 cups + 2 Tbsp flour, about the same in sugar (not sure?), and like two sticks of butter. I think that was the recipe. Knead it together, bake at about 325  to 350 degrees Farenheit. It's been years so I can't remember the exact measurements.

Blessed be,

Morgan
 
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July 23, 2007, 6:24 am PDT

Happy Birthday, Becky!

I hope it's a great one! {{hugs}}

Blessed be,

Morgan
 
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July 23, 2007, 6:31 am PDT

Simone - Re: Dutch Pie

Quote From: simonecornelia

I wish you my dear Becky,

 

 

A HAPPY BIRTHDAY!!!!!!

 

 

 

Enjoy the day and night(hmm) but I am Dutch but i have never heard about a dutch pie or even a dutch pie, but anyway, i hope you will have a very nice and happy, painfree day.

 

Yours sincerely, simonecornelia

No dutch pie here that I see. :) This is a recipe that calls for pie filling, but it is cooked in a device called a Dutch Oven. Here is an article explaining what it is, with pictures:

http://en.wikipedia.org/wiki/Dutch_oven

According to the article, it's called a cocotte in French, if that helps.

Blessed be,

Morgan



 
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July 23, 2007, 6:32 am PDT

Thank you

Thank you profderien

 

LOL would you believe that's about as bad as I get attitude wise?  Yes I was in one of those moods and I finally had a place to let it out instead of in my hubby's ear.  He sure is glad I found this site.  I've lived with this for so many years that you would think it would get easier over time to accept instead of more frustrating.  I know that it has and will progress over time.  We even moved to a different State to help me.  Talk about a wonderful man.  He did this for me so we could have a better life together.  And yes it's helped greatly.  These are the type of people I surround myself with now.  It helps your mental state even when you have really bad days.

 

The information you meantioned I will for sure be looking into.  I am also looking at alternative ways instead of having to depend on the heavy pills for the pain.  I sure do get tired of taking them :P.  Sadly though through history the medical profession is known for not accepting these illnesses until they just don't have a choice.  And we the people who live it have to wait it out or do what we are doing now and that is fight for the knowledge and ideas to help us and others like us.  That's why I like this message board.  Different areas of Chronic Pain that may in some way help someone else who is showing similar signs and take the time to look at all information out there.

 

But first you need to have the right care giver to help you find, help or even try these ideas.  If you don't have that then it is going to be a long road ahead.  Second have the people in your life who will make life worth living to the fullest.  Third REMEBER you aren't alone.  There are others out there who will understand about pain and have the compasion and understanding for them that you want and need for yourself.  And last but not least keep as positive as possible.  It will get you through the dark painful days LOL even when you get cranky like I did yesterday.

 

Have a wonderful blessed day all!

Huntn

 
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July 23, 2007, 6:45 am PDT

Hey there prof de beaucoup....

Quote From: profderien

hullo --

 

is it possible that these references to scoliosis are the same as what your initial MRI called a "congenital" abnormality?  it surely cannot be a very serious case, else you would know about it without need of any scan at all, trust me...

 

cholecytitis which happens all the time -- ?  you have gall bladder attacks/gall stones? let me see what my gut tells me on that one, because i do know how very, very painful that can be... hmmm, wait!  the message is getting clearer... here it comes:

 

HAVE IT REMOVED! i am in no way making light of your problems.  i do think that in the years since the accident you have understandably become obsessed with all that is wrong.  play to your strengths instead.  and when people recomment counseling or therapy, there is nothing in that that impunes your character or sanity -- quite the opposite, really... the body and the mind are so intimately connected that to care for one is to respect the other.   angelicspirit, i gotta admit that red flags went off when i read in your initial post that a lawyer had pretty much controlled your medical treatment immediately following the accident. by the time your pain became chronic in nature -- you didn't have a good pain management doctor or clinic and that can make all the difference in the world.   i have been kind of where you are now... and yes, you are *very* angry, by the way (trust us)... and can only tell you that my life improved a great deal when i decided to let a few medical professionals just do their job without my projecting weird and evil intentions on them.  i hope you will be able to do the same.  just by letting go of some of the control -- you can take a deep breath and relax some.   do this old hag a favor, would you?  STOP PLANNING TO BE IN PAIN FOR THE REST OF YOUR LIFE.  you wrote somewhere that that was what you were told.  well, that is lousy advice!   i would love to hear more about your college work and what you plan to do there -- when you have spare time.   take all this with a huge freaking grain of salt, know i care, and... be well -- prof

My dear life-saving friend,

 

I want to hug you too with the soffest wings i could find. Thank you, thank you, thank you,thank you,thank you, thank you,thank you and thank you again and again again!!!!!

 

I felt your foot in my bottum real hard, but it felt real good. And your SWEET tomatoes were dillicious*. OG, was i feeling down, i really did not care anymore. But know i am feeling ok again. Last week and the week before, as i said i would be i was very 'manic' due to my meds, but now i am quiet-ing* down. But....

 

Last sunday, not yesterday, i got out of my HOUSE at last, after 2moths, we had friends over, and I invited them, imagine that..... and we had a BBQ and it was dilicious* .

I was dressed up, put on make-up, drank some beer and was eating like i was pregnant IN MY GARDEN. And all because of you, thank you so much,so very much.

 

At one point, my husband concidderd* to put me in the hospital, so they could keep an eye on me, i was so depressed,God, that was a long time ago, but i survived again...

 

And saturday-evening, i did drive for the second time with our new care, to go and visit the same friends at their new house and we stayed untill 1.3OAM. So, we did have fun again.

 

And another thing, last week, i started painting, imagine that, me painting. We must do the windows, all of them, 16, the front and back door and the wooden garage, a huge work and we will put it in a kind samon-grey-beige color. I prepared everything in my wheels, and then stood up and painted 2X half an hour. I was so happy.

 

So my sweet prof, i owe you big time.

And remember, i said, that i have started to plant also some things, they are growing......

 

Love you sincerely, simonecornelia

 

PS I hope that you are feeling as good as you can feel, but you may be proud on yourself, you saved a life, you sure did. Thank you again.XXXXXXXXXX

 

 

 
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