Hi!
Our stories are very similar. Ultram and Buspar did nothing for me. I tried using NSAIDS and I developing stomach bleeding and now I am not allowed to have Tyleno, Aspirin, NSAIDS of any kind. Plus, my anesthesiologist doesn't prescribe pain meds with Tylenol or Aspirin or NSAIDS in them as she said it can cause major damage to the stomach, kidney and/or liver if taken for months and/or years.
I thought the NSAID I first took was so wonderful compared to taking Vicodin. But, one day several months after being on the NSAID, I was walking through my kitchen and suddenly threw up all over the white tile. It totally surprised me. There was both dried blood and a small amount of red blood in the mess on the floor. I cleaned it up (what fun...) and called my internist and he had me meet him at the ER where a gasteroneneterologist was waiting along with my anesthesiologist to do an upper GI diagnostic test. Turned out I had a bleeding ulcers in my stomach from the medication.
So, they put me back on the Vicodin and then my internist thought since the pain wasnt going away even with me biking 25 miles per day, yoga, and weight training that cutting back on my cycling would help. It didn't. (actually the cyling kept all my muscles from getting cramped) so I finally gave in and called the anesthesiologist office for an appointment. It was easy with a referral back in 2000. Now, if people want to get in for a consultation...they have to provide medical records for the past two years that specifically show where the doctor visit was for a painful condtition. Two MRI's, a printout from your pharmacy for the past 6 months, and a letter of reference from the treating physician. THEN, the pain specialist looks over all the information and decides if she is the best person to help you. In one case, she turned away one of my friends as she said she needed an orthopaedist instead of her. In another case, she turned it away as her instincts upon meeting her was that this woman was looking for medications even though she had MRIs, etc. 5 years later, my friends has had her 21st surgery. She's now in a wheel chair and in the process of getting divorced. Her daughter blames her stepfather for divorcing her Mom due to all the medications and surgeries that annoyed him. I have tried to get her to see a psychiatrist to help her deal with her chronic pain (learning things like the relaxation response, etc.) and to give her body a rest from all the surgeries, that she is just building up more and more scar tissue. Now, she called yesterday and said they think she has Crohn's disease. She is only 35 and I feel bad for her but she does suck all the energy out of people. She always has an excuse for why she didn't take the exam in college that day, etc. until finally she got arrested for missing traffic court due to a suspended license for not getting her insurance in on time. She had to get a mug shot, fingerprints, the whole thing. Now she can't drive until she goes back to court, goes to driving school, etc. & has a 4 year old to take care of. She cries all the time about the pain she is in. But, I can't get a reading on her whether she has true physical pain or whether she is just desperate for pills. She is constantly asking me for some of mine. I keep it locked up whenever she would come visit me in Orlando.
Since you are in the field....what do you think? I haven't been in the CAP program very long so I have 2 years to go and then my rotations, then after I get board certified, I will go on for my Master's. I am getting a dual major: the other in Forensic Psychology. But, my goal is to help women with substance abuse and domestive violence abuse get their life back.
(and yes, I will work with men , too because I have seen a male neighbor be physically abused by his wife. She would throw plastic chairs at him, glasses, etc. He is a surgeon and if she hurts his hand, she'd lose her big home. So, I want to make sure men don't get ignored.)
The migraine meds work great for me. I was put on Topamax and Atenelol for migraine prevention and they worked but in June I left them behind in my makeup bad and I thought, well, 48 hours away from it won't hurt. Well, I was in full withdrawal by 36 hours off of the preventive meds. We had to leave Miami and go back to Orlando to see what to do. I was told to take one of each med I had and givve it a little while. Well, that came back up, too. Then we didn't know whether to retake the meds (pain, headache, etc.) So, the ER physician said to take one of everything except the fentanyl which is dissolved between the cheek and the tongue and they weren't sure how much my body had absorbed.
It works the best for my pain. Fast acting but not very long acting. I'm using one right now. It is the drug I've found that I have no side effects at all and can stop and start it at will. I consider myself blessed to have that.
I'm so sorry about your Dad's suicide. I lost my Mom, my brother and my twin all by the time I was 2l. So, as you know, the holidays can be really difficult. I see a psychiatrist right now as I am getting out of a domestic violence marriage. I didn't realize I was in one until I started studying domestic violence and found out it didn't have to be physical: it is also economical, emotional, verbal, etc. I was text messaging my ex tonight as he has our son this weekend & I mentioned seeing him for just lunch & a movie so he and his new fiancee (they dated 4 months and got engaged & are getting married within the next 8 weeks, they aren't sure or aren't telling. She worked for him and they claim they really did only date 4 months. None of the four kids (two and two) have met each other. I can only imagine what her two sons (in college in alabama think of their Mom getting engaged so quickly. I just ignore all the rumors throughout the company. People can be so insensitive. If I WERE addicted and struggling really bad with it right now, I probably would be using to numb myself from the emotional pain of what he put me through. I needed money to stay in a hotel while we were separated but went to our son's soccer game & the hotel didn't take cash only credit cards & he refused to take $100 from me and put my room on his card. I ended up sleeping in my car in 40 degree weather. The transmission on my BMW would not go into reverse for 8 months until I gave the car back to him in the divorce (I guess he repaired it). I'm now trying to get a car but he is fighting a divorce order to give me my assets to start over. It was horrible with no reverse. I'm too injured to attempt to roll a heavy car back and it aggravated my neck/back so badly I'm having to have some nerves severed and so far I have a l00% success rate in the areas where she has done this laser surgery. It is something new and there isn't any hospital overnight, no stiches or anything. The first week is excrutiating but after that places where I had pain up to level 10 are not pain free. I'd love to talk more with you. It sounds like we have a lot in common. Actually, I find here at this board that my story is not unique....we are all in the same situation. People say I'm lucky about getting meds (but, I think inside...well, I'd really prefer not to NEED them, even if it is medically legit). It's expensive, people judge you for it, my husband used my 3 hospitalizations against me in court & temporarily got the kids and we are co-parents but I would have had sole custody if he hadn't taken pictures of me at night in my OWN bed & put my medications out by the lamp and then put out 7 year old on the right side of the king size bed and then told the Judge he found our son in our room like that all the time. He had set up the whole thing. BUT, how could I fight pictures??? SO,, after staying home with my kids for 18 years, I had to vacate my brand new custom built home over 3,000 SF & tell my 7 year old Mommy isn't going to be coming back. He is just now adjusting to it. If I hadn't had taken childhood and adolescent psychology I don't know how I would have been able to help them. They see their father for what he is now yet I just feel sad for all of us. I even feel sad for the women he has convinced that he is so wonderful when I know how he is. He kept a million dollars in another account in his name and then spent it on a home in another state after we were separated. So, now I have to go back to the Judge and let her know he hid assets and I have four other cases where he committed perjury. One of his major problems is that he gave me a towel to get sick in and it had inhalants in it and caused a brain seizure in front of him and he did nothing. No concern at all and slept in our son's bedroom that night. He found me in a coma the next morning and still didn't call 9ll. I was in blood, urine, feces, and vomit & I think he was hoping I was dead. So, now the prosecutor in the county we lived in wants to talk to me. (so now you see why I'm seeing a psychiatrist? Stress aggravates pain and I am having these laser surgeries every 3 weeks so it has been a rough summer into fall).
BUT, I am taking care of myself and hopefully I'll be off all meds by January as my last surgery is in December and unless I have problems just stopping them myself (my anesthesiologist has already written out a schedule of decreasing my meds from 2 every 4 hours to nothing within 30 days so I don't anticipate problems. BUT, even taking pills LEGITIMATELY hurt me in my divorce badly as he used them against me. My lawyer said he hadn't seen a client be set up like me in his 30 years of practice. And yet I look at my nightstand and there are anti-anxiety, sleep, pain, muscle relaxers, in the drawer and I dont feel any pull to take them. Quite frankly, I think subconsciously I'm afraid my ex will come after me about them. So, I have my lawyer call once a month for a random drug test (except surgery weeks) and so far all six have been clean. That way I have evidence for when we go back to court.
So, pills can be a double edged sword. Such sweet relief after the surgery, yet, it someone like a spouse claims you have a problem, well, you do.....whether it's really having one or proving you don't. The Judge put in my divorce decree I can take anything I want, including narcotics. But, it took a lot of work to get that done. And the betrayal I felt sitting in court and seeing pictures of me in my bed, asleep, with my son and my meds on the other side of the bed by me. It was horrible. And to think my ex put him back in his bed, put my meds back up in the drawer and then acted the next morning like nothing had happened. So, I'm sure anyone reading this could understand how a person in my situation would be susceptible to numbing their pain but I'm too afraid to take it after what my husband did. I don't get mammograms, etc. right now. I've got to get past being afraid to go to the physician.
Sorry to ramble on. I am alone right now and have no one to talk to in the middle of the night.
Thank you for listening. Please email me and tell me what you are taking or trying not to take, how you are feeling, etc. I love hearing people's stories. I think all people are good, we all just make bad choices at times.
Phyllis