My daughter is 7. It was not until she was about 5 that I finially received the right diagnosis. I am looking for a doctor in Wisconsin to treat the whole person with the syndrome. It gets very tiresome to run this poor child to a million different doctors. They jushave no clue. I have had several doctors tell me that I am over-feeding my child. She is over weight. I count calories, watch sugars, watch salts. This child knows what she can and can not eat. She is the light of my life. She is the happiest child you will ever meet. She is in 2nd grade. I go to school at the start of each new school year and provide all the staff with the lastest news. I provide them with behavioral sheets. Specifically check on her progress weekly. The school keeps me informed as to any potential problems. Open communication is the key. All of her care-givers know what I know. When we encounter any new situation, we all discuss it. The only other problem I have is the temper. It gets out of hand. She has to argue. Not every day , but when she has set her mind to something, that is that. We need to teach these children to help manage their food intake. I include my daughter in all the decisions that concern her. She may not always understand, but I explain in her terms. It works for my family. If any one out there can provide me with any doctor information it would be greatly appreciated.
konasch@yahoo.com
