Messages By: nortonmom

As the mother of a 31 year old son with Prader Willi, I would just ask all to wait until the show airs to judge someone.  This syndrome has so many sides and opinions.  I can tell you my son is obese and a diabetic and also now suffers from pulmonary hypertension, tremendous fluid retention, cellulitis and now uses oxygen 2a dat.
/He presented all the common characteristics and life has been difficult.  The last few years have dealt with declining health, diabetic control issues and horrific temper tantrums.  We have a wonderful doctor who will try anything that will help without demeaning our son.  (Prader Willi persons have a skewed view of reality so our son thinks otherwise)  Since this isn't easy to describe, you just take each day at a time.  Some days are very low and some are a big high.  Our son doesn't think there is anything wrong with him, just everybody else is wrong.  Our younger sons (in their 20's) have coped with this all and are wonderful, helpful sons who allow my husband and I to escape the house occasionally for some time alone.  Extended family is helpful but it's hard for them to understand what to do.  He only allows my sister (a nurse) to do his insulin and testing.  Let's all watch and see what the show tells us about this particular family and we can comment afterwards.  I KNOW I have thought somedays about how easy it would be to become an abusive parent by crossing the line but until you've experienced this life 24/7, don't judge anyone too harshly.  Thanks for listening 

 I so agree about the slant of the show.  I really felt this vice principal was  put under a lot of pressure on the show.  Seeing her in tears in the last minute showed that she had not been able to get all her information out.  We are living in the 'not my fault' generation.   It seems to me that no matter what a problem may be, no one will take ownership of their (or their children's) fault.  This must have been the reaction from the parents that are now charged.  Apologies, after all the turmoil ,are not enough when parents and their children don't take responsibility until the word 'lawsuit' exists and even then the apology is suspect and probably suggested by their own lawyer.